Happy Feet in Chicago!
However, you know what? Looking back on what Chicago has managed to do to my health - that’s kind of somewhat alright with me.
Do we see that I’m wearing normal sandals? Or rather, sandals with a little heel, no doubt!
Gone is the era of the public wearing of my sad looking black bedroom slipper things with every single outfit, no matter how bright, how sequined, nor how ladened with tropical flowers (oh yeaaaa, I’m that girl).
Sadly, it didn’t seem to matter to the world that they were oh-so-expensive & UGG’s, everyone just seemed to find them oh-so-overpriced & UGG-LY - which was devastating seeing as longtime readers know my adoration, adulation, & admiration of beautiful footwear.
And what about the color of my feet in this picture? Yes ok, I’ll give you the fact that there’s a slight difference in color (if you don’t know what I’m talking about click here or here for a greater understanding of CRPS/RSD symptoms), but hardly so when compared to this! Or how about this.
I love you Chicago!
Until my next craving of sun, sand, & sea at least. ;) xx
slowlyrapidly becoming a part of of the Chicago Skyline. xx
I’m having surgery again today, hear why in this Vlog!
Also… y’all deserve a proper explanation as to where I’ve been over the past (yikes…!) 8 weeks.
Lots of love. Be well.
“Whatever Happens, Happens…”
I was in an extreme amount of pain the moment that the above photo was taken, but you know what - here’s how I choose to look at it (Hint: it really helps!): My Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy (CRPS/RSD) may be hurtful, but my friendships bring me joy, hope, love, faith, and strength. A wicked combination that nothing - no disease, chronic illness, sickness, pain, etc. - nothing, is stronger than.
Living in and out of hospitals, being cut into every other month (with no cure to be found) - there is at times so little that brings us laughter, so little that brings us hope, and, even in the best of us, there may be at times a fading or flickering faith that things might not get any better. Chronic illnesses, ugh. I had no idea before I got one, but boy do they take it out of you.
If there’s one thing I’ve learned though it would be this - chronic illnesses put stuff back in to you as well. And it’s damn good stuff too!
Living in and out of hospitals, being cut into every other month (with ‘seemingly’ no cure to be found) there’s so little time for drama that your friendships just become true. There’s so little extra strength for pettiness that your experiences just become pure. When dealing with hope, let’s hope it has nothing to do with worrying that some minor inconsequential action of yours has lead to the petty argument between your flatmates.
And as for love & joy… well I think there’s always enough of those to go around - chronically ill or not. :)
Goodnight! I hope you all had relatively pain-free days. xx
Happy Birthday to:
The Best-Nurse Ever. The Best-Friend Ever. The Best Cheer’r-Upper Ever. The Best Support-System Ever. The Best Advice-Giver Ever. The Best at Inducing-Nausea-Related-Posts Ever (oh, whatever)…
And most importantly - HAPPY BIRTHDAY to the best Mummy in the Whole World!
No idea what I’d do without you.
Love. Love. Love. xx
The truth is that our finest moments are most likely to occur when we are feeling deeply uncomfortable, unhappy, or unfulfilled. For it is only in such moments, propelled by our discomfort, that we are likely to step out of our ruts and start searching for different ways or truer answers.” / M. Scott Peck
At the start of your chronic pain journey - whether already diagnosed with a chronic pain disorder or still suffering undiagnosed pain - it may be extremely overwhelming to begin your trek through the mountains of information piled up out there.
Obviously in my case, this held true when I was first told I had CRPS/RSD, but from my conversations with other sufferers, this appears to hold true for many other diagnoses also.
Oh, maaan! It’s hard enough to even rally yourself out of bed in the morning, no? How are you then expected to navigate through facts, fiction, negativity, & just plain ignorance?! No wonder your joints are creaky and stiff with exhaustion. Oy!
Have no fear, however! There’s no more need to go it alone. Here are some helpful resources for chronic pain that I’ve managed to find throughout my journey. Take a browse by clicking on the names! I hope they help:
So far so good!
After an initial rough couple of days (picture/video and update on that to come once I get all my pictures and videos sorted) which resulted first in the ICU and then in me having to stay in the hospital due to extreme pain in my back at the site of the incision, I am now out of the hospital and back on my feet (oh, I love a good pun!).
I am SO pleased with the Spinal Cord Stimulator. Literally, could not be happier! It exceeds all expectations at the moment and is completely different to what I thought it would be. Is that what y’all thought too? There have of course been a few glitches and I’m sure there are a few more to come, but for the most part… I love it. In fact, although I’m still testing, I’m booked to implant the permanent SCS on April 2nd, 2012. :)
Here I am walking (in exercise clothes and exercise shoes with laces!) for the first time in 2 years! Excitement (cue goofy arm movements…) I hope the video works and I hope you’re all well.
Lots of love, Danielle xx
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