Unfortunately, due to the massive amount of nerve damage, I was left with a debilitating chronic neurological disease called Complex Regional Pain Syndrome, or Reflex Sympathetic Dystrophy (CRPS/RSD) - which is also widely known as the most painful condition in the world. I find it impossible to explain so I’ll simply say that it is considered by the McGill Pain Scale to be above the pain caused by the amputation of a digit, cancer, and even… childbirth. Yup!
Ranked one of the ‘5 Craziest Diseases’ by Fox News, it was described as “being tormented every waking moment of every day by searing pain in your limbs.” Needless to say, CRPS/RSD is not very fun and entails many medical procedures and some ketamine infusions, whereby I’m flooded with horse tranquilizer for 3 days in a row. Nevertheless, I get by with a little help from my blogs :).
Never heard of this horrifying condition? Neither had I! There’s a shockingly low awareness level that desperately needs to be remedied. Go to the Reflex Sympathetic Dystrophy Syndrome Association’s (RSDSA) website to both learn more and (if you’re able and should so desire) to donate.
I’m excited to now be able to say that you can also learn more about this chronic illness on a more personal level through my blog, Project3x5. There’s a lot of negativity towards the condition from many other sufferers (and who can blame them, really?), so Project3x5 aims to be a source of hope, positivity, fun, and possibly even inspiration through the daily happenings of my own life. We also hope to raise that staggeringly low awareness level for this debilitating condition.
I may be in pain, but with all of this going on I am definitely very content in my mission. So, in keeping with the starting theme of clichés: your life can change in an instant, but funnily enough you’ll always end up right where you need to be.
And with that realisation…I just have to smile.
Lots of Love,
- Follow Project3x5
- RSDSA website
- Donate to CRPS/RSD
- Any questions/comments can be sent to email@example.com