Because every week should start off with something beautiful, something blue, and something to inspire and be coveted by you… xx
*Boys, please hang around for this one! I promise, it’s more than just a girly shoe post!
It is my absolute honor to lead y’all to a super fun fashion-image blog I recently discovered. Named MTV fashion and showcasing pieces of absolutely impeccable, yet still trendy, taste; I was thrilled to find it while browsing for something to distract me from my way-over-reactive nerves yesterday.
Now, if you thought that the above-mentioned shoes were something special, you’re in for even more of a treat…
Imagine my surprise when, while navigating amongst a sea of chic, I discovered a teeny, tiny blurb explaining the blog to be run by a fellow CRPS/RSD warrior named, Alicia. Having been born in Paris, but now hailing from New Zealand, Alicia uses the whimsy of fashion as an escape from the fact that, ironically, the disease has taken away her ability to walk at the far too early age of only 15 years old.
She’s beautiful, smart, confident, and has gorgeous taste. Life is cruel, but we are kind. As Spoonies, let’s rally around this lovely lady (whose other blog - a diary of her life with CRPS/RSD may be found here) and show her all the love that we can. x
Loads of love to you all & be well!
Ps: Although this was not the case with Alicia, should there be another CRPS/RSD warrior/blogger that you think needs featuring, write to me and let me know why! I love hearing about experimental treatments, books, etc. also!
I’m available at: firstname.lastname@example.org or on twitter at: theproject3x5. Don’t forget that I always love hearing from you :) xx
It’s one of those bad, bad pain days today.
Ouch! Ouch! Ouch!
Thinking about it though, it’s so wonderful how tomorrow is another day, isn’t it?
It may always hurt, but (fingers crossed), at least tomorrow it may hurt just that little bit less. Enough to get us through and allow us to deal with things just that much easier. :) xx
Happy Feet in Chicago!
However, you know what? Looking back on what Chicago has managed to do to my health - that’s kind of somewhat alright with me.
Do we see that I’m wearing normal sandals? Or rather, sandals with a little heel, no doubt!
Gone is the era of the public wearing of my sad looking black bedroom slipper things with every single outfit, no matter how bright, how sequined, nor how ladened with tropical flowers (oh yeaaaa, I’m that girl).
Sadly, it didn’t seem to matter to the world that they were oh-so-expensive & UGG’s, everyone just seemed to find them oh-so-overpriced & UGG-LY - which was devastating seeing as longtime readers know my adoration, adulation, & admiration of beautiful footwear.
And what about the color of my feet in this picture? Yes ok, I’ll give you the fact that there’s a slight difference in color (if you don’t know what I’m talking about click here or here for a greater understanding of CRPS/RSD symptoms), but hardly so when compared to this! Or how about this.
I love you Chicago!
Until my next craving of sun, sand, & sea at least. ;) xx
I’m having surgery again today, hear why in this Vlog!
Also… y’all deserve a proper explanation as to where I’ve been over the past (yikes…!) 8 weeks.
Lots of love. Be well.
“Whatever Happens, Happens…”
I was in an extreme amount of pain the moment that the above photo was taken, but you know what - here’s how I choose to look at it (Hint: it really helps!): My Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy (CRPS/RSD) may be hurtful, but my friendships bring me joy, hope, love, faith, and strength. A wicked combination that nothing - no disease, chronic illness, sickness, pain, etc. - nothing, is stronger than.
Living in and out of hospitals, being cut into every other month (with no cure to be found) - there is at times so little that brings us laughter, so little that brings us hope, and, even in the best of us, there may be at times a fading or flickering faith that things might not get any better. Chronic illnesses, ugh. I had no idea before I got one, but boy do they take it out of you.
If there’s one thing I’ve learned though it would be this - chronic illnesses put stuff back in to you as well. And it’s damn good stuff too!
Living in and out of hospitals, being cut into every other month (with ‘seemingly’ no cure to be found) there’s so little time for drama that your friendships just become true. There’s so little extra strength for pettiness that your experiences just become pure. When dealing with hope, let’s hope it has nothing to do with worrying that some minor inconsequential action of yours has lead to the petty argument between your flatmates.
And as for love & joy… well I think there’s always enough of those to go around - chronically ill or not. :)
I Flunked the Debunk…
Tomorrow morning, the permanent Spinal Cord Stimulator (SCS) is going to be implanted. I attempted to debunk my feelings on it while flying to Chicago earlier today, but I was unsuccessful in a huge way…
I’m all over the map. Nope, not just physically - mentally too.
I’m a human mood ring, one moment hot, the next moment cold. Nope, not just physically - emotionally too.
Tomorrow should be interesting, eh? xx
At the start of your chronic pain journey - whether already diagnosed with a chronic pain disorder or still suffering undiagnosed pain - it may be extremely overwhelming to begin your trek through the mountains of information piled up out there.
Obviously in my case, this held true when I was first told I had CRPS/RSD, but from my conversations with other sufferers, this appears to hold true for many other diagnoses also.
Oh, maaan! It’s hard enough to even rally yourself out of bed in the morning, no? How are you then expected to navigate through facts, fiction, negativity, & just plain ignorance?! No wonder your joints are creaky and stiff with exhaustion. Oy!
Have no fear, however! There’s no more need to go it alone. Here are some helpful resources for chronic pain that I’ve managed to find throughout my journey. Take a browse by clicking on the names! I hope they help:
“Don’t tell God how big your storm is. Tell the storm how big your God is.”
That would be my beautiful foot. Jealous?
My poor little toe was bitten by an ant last night. Think of it as the poor-man’s version to one of those fancy Asian pedicures where the fish bite your feet…
That last bit was a joke. Unfortunately, the ant bite was not. Long story short, I’m now flaring quite badly. Amazing how quickly our tides may turn, hey?
Praying for a quick recovery.
On a positive note though, I have less than a week to wait for the actual, final, real life, absolute Spinal Cord Stimulator (SCS) to be implanted. Woaaah. That’s big. My lower body is jumping for joy (especially now!), but my back is still hurting from the trial and so is slightly worried about it. Ultimately though, I know that this implant will definitely be for the best. For sure.
Any last minute tips on what I can expect? Suggestions? Comments? Warnings? Am I up for another round in the ICU? Another emotional roller coaster à la the trial?
I’m open and willing to listen to all you have to say. In fact, everything would be appreciated. Though please try to frame the negative warnings as thoughtfully as possible. I’m in pain and so a bit sensitive from sleep deprivation/nervousness. You know how it goes! Thank yooou! xx
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