In March of 2010, my daughter was involved in a serious car accident that left her battling the chronic neurological pain disorder Complex Regional Pain Syndrome (CRPS/RSD) and changed our lives forever. Follow us along on our journey. Our suitcases have no room for negativity.

2nd May 2012

Photo reblogged from Project3x5 with 23 notes

project3x5:

Strength, Love, Peace, & Hope. 
My heart goes out to all those who need it.
Anja, my best friend especially. xx
May this bring you some cheer. :)
Be well! Lots of love. xx
(Image via Journeys and Voyages)

project3x5:

Strength, Love, Peace, & Hope. 

My heart goes out to all those who need it.

Anja, my best friend especially. xx

May this bring you some cheer. :)

Be well! Lots of love. xx

(Image via Journeys and Voyages)

Tagged: Complex regional pain syndromeRsdCRPSPainProject3x5Invisible IllnessHopeFaith

2nd April 2012

Photo reblogged from Project3x5 with 17 notes

project3x5:

I Flunked the Debunk… 
Yippee!!! Boohoo!!! 
Tomorrow morning, the permanent Spinal Cord Stimulator (SCS) is going to be implanted. I attempted to debunk my feelings on it while flying to Chicago earlier today, but I was unsuccessful in a huge way… 
I’m all over the map. Nope, not just physically - mentally too.
I’m a human mood ring, one moment hot, the next moment cold. Nope, not just physically - emotionally too. 
Tomorrow should be interesting, eh? xx

project3x5:

I Flunked the Debunk… 

Yippee!!! Boohoo!!! 

Tomorrow morning, the permanent Spinal Cord Stimulator (SCS) is going to be implanted. I attempted to debunk my feelings on it while flying to Chicago earlier today, but I was unsuccessful in a huge way… 

I’m all over the map. Nope, not just physically - mentally too.

I’m a human mood ring, one moment hot, the next moment cold. Nope, not just physically - emotionally too. 

Tomorrow should be interesting, eh? xx

Tagged: CrpsRsdComplex regional pain syndromeReflex Sympathetic DystrophySpinal Chord StimulatorSurgeryInvisible IllnessDiseaseFaithGodPrayStrengthInspirationProject3x5

27th March 2012

Post reblogged from Project3x5 with 9 notes

Looking for Pain Resources…?

project3x5:

At the start of your chronic pain journey - whether already diagnosed with a chronic pain disorder or still suffering undiagnosed pain - it may be extremely overwhelming to begin your trek through the mountains of information piled up out there.

Obviously in my case, this held true when I was first told I had CRPS/RSD, but from my conversations with other sufferers, this appears to hold true for many other diagnoses also. 

Oh, maaan! It’s hard enough to even rally yourself out of bed in the morning, no? How are you then expected to navigate through facts, fiction, negativity, & just plain ignorance?! No wonder your joints are creaky and stiff with exhaustion. Oy!  

Have no fear, however! There’s no more need to go it alone. Here are some helpful resources for chronic pain that I’ve managed to find throughout my journey. Take a browse by clicking on the names! I hope they help:

Read More

Tagged: PainRsdComplex Regional Pain SyndromeCRPSReflex Sympathetic DystrophyChronic PainIllnessProject3x5

4th March 2012

Video reblogged from Project3x5 with 23 notes

project3x5:

So far so good!

After an initial rough couple of days (picture/video and update on that to come once I get all my pictures and videos sorted) which resulted first in the ICU and then in me having to stay in the hospital due to extreme pain in my back at the site of the incision, I am now out of the hospital and back on my feet (oh, I love a good pun!).

I am SO pleased with the Spinal Cord Stimulator. Literally, could not be happier! It exceeds all expectations at the moment and is completely different to what I thought it would be. Is that what y’all thought too? There have of course been a few glitches and I’m sure there are a few more to come, but for the most part… I love it. In fact, although I’m still testing, I’m booked to implant the permanent SCS on April 2nd, 2012. :)

Here I am walking (in exercise clothes and exercise shoes with laces!) for the first time in 2 years! Excitement (cue goofy arm movements…) I hope the video works and I hope you’re all well.

Lots of love, Danielle xx

Tagged: Complex Regional Pain SyndromeReflex Sympathetic DystrophyPainIllnessFaithProject3x5

23rd February 2012

Post reblogged from Project3x5 with 10 notes

Each time it is the most painful ever… and then it gets worse.

Tagged: crpscurechronic painchronic painchronic illnesspainpersonalproject3x5lifeYahamarhinoaccidentanxietyawarenessreflex sympathetic dystrophyrsdGodfaithmedicalnatural curesnatural remedieshealinghopeHelphealthholistic

7th February 2012

Quote reblogged from Project3x5 with 7 notes

I know I have the body of a weak and feeble woman, but I have the heart and stomach of a king.” / Queen Elizabeth I
— (via project3x5)

Tagged: project3x5paincomplex regional pain syndromereflex sympathetic dystrophyrsdcurechronic paincrpschronic painlifeGodfaithdanielleadviceanxietyawareness