Goodnight! I hope you all had relatively pain-free days. xx
I can’t lie to you - despite all the positivity that I keep up, there’s been something nagging at me recently. I saw this little ditty the other day and it truly hit home.
CRPS/RSD, Chronic Illnesses, & Invisible Illnesses (actually any life-changes in general - divorces & deaths also seem to come to mind) are really tough to squeeze into your life.
Sticking to the health-wise subjects though: wrapping your head around what’s happening to your body is usually your first step. Then, once that’s been figured out, you’ve got to sort out how you feel about the whole shebang, and then go about fixing & arranging how you’re going to fit whatever it is that you’re dealing with into your life.
This little quote-image thing above sat really, really well with me and eased my emotional butterflies in a huge way because I’ve been having a really difficult time trying to figure out what my current life is at the moment, anyway!
I mean… first of all, I sort of LOVED that it was promoting not fixing the original broken thing as that would be entirely impossible for me! A) CRPS/RSD has no cure. B) How can one fix something that’s broken if one is not even sure what they’re fixing? I used to imagine that I would fix my leg and then move immediately back to London to finish the legendary masters, but at this point 2 years on - although we speak almost everyday - my friends have all moved on. They’ve got jobs & they’ve finished grad school. So, Perhaps I might be miserable if I did that. Don’t you think?
There’s no sense me crying over spilled milk about the entire ordeal (HA! I say that now!) The fact is… I’m still me! And - based on what I’ve been through - a more interesting version of me at that! I have stories galore now, and I’ve sure met some incredibly interesting people on this old journey of mine.
Amazing! This Little Sign Has Changed My Mindset…
So, it’s official! A graphic I found on the internet has now changed my entire mindset. I don’t mean for that to sound facetious or ironic. I actually truly love it!
Although, I think it’ll be important to remember that I’m still me, and that I don’t need to give up the things that I love just ‘because’, the perfectionist in me will now attempt to stop fixing what’s broken and will start over, creating something better.
All from a little internet sign. How lovely :) xx
(Image via lessonsinromance)
Strength, Love, Peace, & Hope.
My heart goes out to all those who need it.
Anja, my best friend especially. xx
May this bring you some cheer. :)
Be well! Lots of love. xx
(Image via Journeys and Voyages)
Happy Birthday to:
The Best-Nurse Ever. The Best-Friend Ever. The Best Cheer’r-Upper Ever. The Best Support-System Ever. The Best Advice-Giver Ever. The Best at Inducing-Nausea-Related-Posts Ever (oh, whatever)…
And most importantly - HAPPY BIRTHDAY to the best Mummy in the Whole World!
No idea what I’d do without you.
Love. Love. Love. xx
The truth is that our finest moments are most likely to occur when we are feeling deeply uncomfortable, unhappy, or unfulfilled. For it is only in such moments, propelled by our discomfort, that we are likely to step out of our ruts and start searching for different ways or truer answers.” / M. Scott Peck
I Flunked the Debunk…
Tomorrow morning, the permanent Spinal Cord Stimulator (SCS) is going to be implanted. I attempted to debunk my feelings on it while flying to Chicago earlier today, but I was unsuccessful in a huge way…
I’m all over the map. Nope, not just physically - mentally too.
I’m a human mood ring, one moment hot, the next moment cold. Nope, not just physically - emotionally too.
Tomorrow should be interesting, eh? xx
At the start of your chronic pain journey - whether already diagnosed with a chronic pain disorder or still suffering undiagnosed pain - it may be extremely overwhelming to begin your trek through the mountains of information piled up out there.
Obviously in my case, this held true when I was first told I had CRPS/RSD, but from my conversations with other sufferers, this appears to hold true for many other diagnoses also.
Oh, maaan! It’s hard enough to even rally yourself out of bed in the morning, no? How are you then expected to navigate through facts, fiction, negativity, & just plain ignorance?! No wonder your joints are creaky and stiff with exhaustion. Oy!
Have no fear, however! There’s no more need to go it alone. Here are some helpful resources for chronic pain that I’ve managed to find throughout my journey. Take a browse by clicking on the names! I hope they help:
Courage doesn’t always roar. Sometimes courage is the quiet voice at the end of the day saying, “I will try again tomorrow”. / Mary Anne Radmacher
Words to live by for those with chronic pain, invisible illnesses, and especially for my fellow CRPS/RSD sufferers. Always know that you’re not alone. xx
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