In March of 2010, my daughter was involved in a serious car accident that left her battling the chronic neurological pain disorder Complex Regional Pain Syndrome (CRPS/RSD) and changed our lives forever. Follow us along on our journey. Our suitcases have no room for negativity.

16th October 2012

Link reblogged from Project3x5 with 12 notes

Project3x5: TheProject3x5 has been nominated for the 2012 WEGO Health Activist Awards! →

project3x5:

Such exciting news! The Project 3x5 has been nominated for The 2012 WEGO Health Activist Awards! Yay!

The blog has been nominated in the Best in Show category meaning that, although I do tweet (Let’s be friends - I’m over at: @theproject3x5), my writing on this blog is up for the…

Tagged: RsdCRPSChronic PainSpooniesinvisible illnesspaininfusionsmedicinehealthhelpfaith

4th September 2012

Link reblogged from Project3x5 with 137 notes

Project3x5: HOORAY! It's September! It's Pain Awareness Month! →

project3x5:

Did you know that September is National Pain Awareness Month?!?

Even better… do you know that there are a ton of exciting events going on all over the USA (and the web, so no excuses!) to raise awareness & education for the cause and to allow us to meet each other for support?!

Yup!…

Tagged: AwarenessCRPSRSDComplex Regional Pain SyndromeReflex Sympathetic DystrophyInvisible IllnessChronic PainFaithHopepain awareness month

23rd August 2012

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project3x5:


Because every week should start off with something beautiful, something blue, and something to inspire and be coveted by you… xx
*Boys, please hang around for this one! I promise, it’s more than just a girly shoe post! 
It is my absolute honor to lead y’all to a super fun fashion-image blog I recently discovered. Named MTV fashion and showcasing pieces of absolutely impeccable, yet still trendy, taste; I was thrilled to find it while browsing for something to distract me from my way-over-reactive nerves yesterday. 
Now, if you thought that the above-mentioned shoes were something special, you’re in for even more of a treat…
Imagine my surprise when, while navigating amongst a sea of chic, I discovered a teeny, tiny blurb explaining the blog to be run by a fellow CRPS/RSD warrior named, Alicia. Having been born in Paris, but now hailing from New Zealand, Alicia uses the whimsy of fashion as an escape from the fact that, ironically, the disease has taken away her ability to walk at the far too early age of only 15 years old. 
She’s beautiful, smart, confident, and has gorgeous taste. Life is cruel, but we are kind. As Spoonies, let’s rally around this lovely lady (whose other blog - a diary of her life with CRPS/RSD may be found here) and show her all the love that we can. x
Loads of love to you all & be well! 
Danielle xx
Ps: Although this was not the case with Alicia, should there be another CRPS/RSD warrior/blogger that you think needs featuring, write to me and let me know why! I love hearing about experimental treatments, books, etc. also!
I’m available at: theproject3x5@gmail.com or on twitter at: theproject3x5. Don’t forget that I always love hearing from you :) xx

project3x5:

Because every week should start off with something beautiful, something blue, and something to inspire and be coveted by you… xx

*Boys, please hang around for this one! I promise, it’s more than just a girly shoe post! 

It is my absolute honor to lead y’all to a super fun fashion-image blog I recently discovered. Named MTV fashion and showcasing pieces of absolutely impeccable, yet still trendy, taste; I was thrilled to find it while browsing for something to distract me from my way-over-reactive nerves yesterday. 

Now, if you thought that the above-mentioned shoes were something special, you’re in for even more of a treat…

Imagine my surprise when, while navigating amongst a sea of chic, I discovered a teeny, tiny blurb explaining the blog to be run by a fellow CRPS/RSD warrior named, Alicia. Having been born in Paris, but now hailing from New Zealand, Alicia uses the whimsy of fashion as an escape from the fact that, ironically, the disease has taken away her ability to walk at the far too early age of only 15 years old. 

She’s beautiful, smart, confident, and has gorgeous taste. Life is cruel, but we are kind. As Spoonies, let’s rally around this lovely lady (whose other blog - a diary of her life with CRPS/RSD may be found here) and show her all the love that we can. x

Loads of love to you all & be well! 

Danielle xx

Ps: Although this was not the case with Alicia, should there be another CRPS/RSD warrior/blogger that you think needs featuring, write to me and let me know why! I love hearing about experimental treatments, books, etc. also!

I’m available at: theproject3x5@gmail.com or on twitter at: theproject3x5. Don’t forget that I always love hearing from you :) xx

Tagged: RSDCRPSPainchronic Paincomplex Regional Pain SyndromeReflex Sympathetic DystrophyHopeInspirationfaith

4th July 2012

Photo reblogged from Project3x5 with 20 notes

project3x5:

It’s one of those bad, bad pain days today.
Ouch! Ouch! Ouch! 
Thinking about it though, it’s so wonderful how tomorrow is another day, isn’t it?
It may always hurt, but (fingers crossed), at least tomorrow it may hurt just that little bit less. Enough to get us through and allow us to deal with things just that much easier. :) xx
(Source: pleaseholdmecloser)

project3x5:

It’s one of those bad, bad pain days today.

Ouch! Ouch! Ouch! 

Thinking about it though, it’s so wonderful how tomorrow is another day, isn’t it?

It may always hurt, but (fingers crossed), at least tomorrow it may hurt just that little bit less. Enough to get us through and allow us to deal with things just that much easier. :) xx

(Source: pleaseholdmecloser)

Tagged: RsdCRPScomplex regional pain syndromeReflex Sympathetic DystrophyPaininvisible illnesshopefaithCureHelpChronic PainHopeSmileHappiness

27th March 2012

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Looking for Pain Resources…?

project3x5:

At the start of your chronic pain journey - whether already diagnosed with a chronic pain disorder or still suffering undiagnosed pain - it may be extremely overwhelming to begin your trek through the mountains of information piled up out there.

Obviously in my case, this held true when I was first told I had CRPS/RSD, but from my conversations with other sufferers, this appears to hold true for many other diagnoses also. 

Oh, maaan! It’s hard enough to even rally yourself out of bed in the morning, no? How are you then expected to navigate through facts, fiction, negativity, & just plain ignorance?! No wonder your joints are creaky and stiff with exhaustion. Oy!  

Have no fear, however! There’s no more need to go it alone. Here are some helpful resources for chronic pain that I’ve managed to find throughout my journey. Take a browse by clicking on the names! I hope they help:

Read More

Tagged: PainRsdComplex Regional Pain SyndromeCRPSReflex Sympathetic DystrophyChronic PainIllnessProject3x5

26th March 2012

Photo reblogged from Project3x5 with 9 notes

project3x5:

“Don’t tell God how big your storm is. Tell the storm how big your God is.” 
That would be my beautiful foot. Jealous?
My poor little toe was bitten by an ant last night. Think of it as the poor-man’s version to one of those fancy Asian pedicures where the fish bite your feet… 
That last bit was a joke. Unfortunately, the ant bite was not. Long story short, I’m now flaring quite badly. Amazing how quickly our tides may turn, hey? 
Praying for a quick recovery.
On a positive note though, I have less than a week to wait for the actual, final, real life, absolute Spinal Cord Stimulator (SCS) to be implanted. Woaaah. That’s big. My lower body is jumping for joy (especially now!), but my back is still hurting from the trial and so is slightly worried about it. Ultimately though, I know that this implant will definitely be for the best. For sure.
Any last minute tips on what I can expect? Suggestions? Comments? Warnings? Am I up for another round in the ICU? Another emotional roller coaster à la the trial?
I’m open and willing to listen to all you have to say. In fact, everything would be appreciated. Though please try to frame the negative warnings as thoughtfully as possible. I’m in pain and so a bit sensitive from sleep deprivation/nervousness. You know how it goes! Thank yooou! xx

project3x5:

“Don’t tell God how big your storm is. Tell the storm how big your God is.” 

That would be my beautiful foot. Jealous?

My poor little toe was bitten by an ant last night. Think of it as the poor-man’s version to one of those fancy Asian pedicures where the fish bite your feet… 

That last bit was a joke. Unfortunately, the ant bite was not. Long story short, I’m now flaring quite badly. Amazing how quickly our tides may turn, hey? 

Praying for a quick recovery.

On a positive note though, I have less than a week to wait for the actual, final, real life, absolute Spinal Cord Stimulator (SCS) to be implanted. Woaaah. That’s big. My lower body is jumping for joy (especially now!), but my back is still hurting from the trial and so is slightly worried about it. Ultimately though, I know that this implant will definitely be for the best. For sure.

Any last minute tips on what I can expect? Suggestions? Comments? Warnings? Am I up for another round in the ICU? Another emotional roller coaster à la the trial?

I’m open and willing to listen to all you have to say. In fact, everything would be appreciated. Though please try to frame the negative warnings as thoughtfully as possible. I’m in pain and so a bit sensitive from sleep deprivation/nervousness. You know how it goes! Thank yooou! xx

Tagged: CRPS RSD complex regional pain syndrome painChronic painReflex sympathetic dystrophy

25th March 2012

Quote reblogged from Project3x5 with 134 notes

Courage doesn’t always roar. Sometimes courage is the quiet voice at the end of the day saying, “I will try again tomorrow”. / Mary Anne Radmacher
— (via project3x5)

Tagged: RsdReflex sympathetic dystrophyComplex regional pain syndromeCRPSChronic painSufferPain

21st March 2012

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project3x5:

Words to live by for those with chronic pain, invisible illnesses, and especially for my fellow CRPS/RSD sufferers. Always know that you’re not alone. xx

project3x5:

Words to live by for those with chronic pain, invisible illnesses, and especially for my fellow CRPS/RSD sufferers. Always know that you’re not alone. xx

Tagged: CrpsChronic painRsdReflex sympathetic dystrophyComplex regional pain syndromePain

Source: joecatholic

13th March 2012

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project3x5:

Such a fan of these handmade plates available here on Etsy!
Daily inspiration AND food all at once?!? Well, you most certainly can’t go wrong with that now can you? x

project3x5:

Such a fan of these handmade plates available here on Etsy!

Daily inspiration AND food all at once?!? Well, you most certainly can’t go wrong with that now can you? x

Tagged: CrpsRsdComplex regional pain syndromeChronic pain

27th February 2012

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Tagged: ChronicIllnessCrpsComplex regional pain syndromeRsdReflex Sympathetic DystrophyInvisible illnesschronic painchronic illnessrare diseaserare illnessrare sicknessmedical awarenesshealthmedicalneurologyleap year2012Rare disease daynerve diseasenerves

Source: jennhope