In March of 2010, my daughter was involved in a serious car accident that left her battling the chronic neurological pain disorder Complex Regional Pain Syndrome (CRPS/RSD) and changed our lives forever. Follow us along on our journey. Our suitcases have no room for negativity.

8th May 2012

Link reblogged from Project3x5 with 17 notes

Fox News Declares CRPS/RSD 2nd of 5 Crazy Diseases. →

project3x5:

Click on the above title to read about the other incredibly intriguing four ‘diseases’. I stopped for a moment afterwards to properly digest my luck at having (in my opinion) the mellowest malady on the list. God is good!

The questions below (before the picture) popped into my head, so I thought through them twice - once as a someone categorically seen as ‘chronically ill’ and once as how I remember things before my accident & subsequent diagnosis.  

BOTH times, not only was my appreciation for what I do have put into perspective, but so was my luck, my love, my strength, and - while this might sound odd to some - my imperfections. This was so moving and motivational.

Whether you’re ‘sick’ or not, I totally recommend you take a moment to just read & think too. You have nothing to lose, but all the perspective in the world to gain :) xx


This article actually made me pleased to have CRPS/RSD. 

Is that how you also feel? 

If you had to have one of the others, which would it be?

If you’re currently ill & had to choose another illness from this list to save a family member from getting CRPS/RSD… would you do it?

And which illness would you choose? 

If you’re healthy, but you had to choose one of these, which would you choose to have?

How do you feel it would it affect your current life? 

Would you rather be ill with something from birth? 

Or have an illness that comes on quickly?

Or slowly?

If you could choose the age to become ill, but only somewhere from 5yrs-25yrs.

What would you choose?

I give all my compassion, prayers & good vibes to those of y’all with the other afflictions. Actually… make that anyone in pain :(

I would LOVE to hear your answers to these. Comment down below, or if you aren’t comfortable doing that, please email me at… theproject3x5@gmail.com. You can also tweet me @theproject3x5 - so many things! xx

The entire article on what Fox News finds so crazy about CRPS/RSD may be found just after my uncolored toenails, but very red toes

NUMBER TWO: CRPS/RSD

TYPE OF DISEASE: Nerve disorder

CRAZY BECAUSE: Causes searing pain as if on fire

CURE: Complex; disease may spontaneously resolve, but treatment usually only lessens symptoms

*

Imagine being tormented every waking moment of every day by searing pain in your limbs. Your arms feel like they are on fire, they are swollen, hot to the touch, and you sweat excessively. These are just a few of the symptoms of reflex sympathetic dystrophy (RSD), a poorly understood disorder defined by pain in the limbs that is way out of proportion from what is expected following a particular injury or harmful event, such as surgery or stroke. The disease is believed to be caused by an abnormal chain reaction of the sympathetic nervous system, the body system that regulates blood flow and other aspects of the skin. Experts liken the pain response to that of an engine revving out of control.

While the disease may spontaneously disappear on its own, many patients undergo intensive treatments for years just to lessen the pain. And for some patients, the pain can become so profound that they must undergo the most extreme and expensive of therapies — being placed under a Ketamine coma — to essentially reset the pain connections of the body. In 2003, under the guidance of German colleagues of renowned RSD specialist Dr. Robert Schwartzman, 14-year-old Lindsay Wurtenberg of the U.S. underwent Ketamine coma-therapy and successfully recovered from a particularly debilitating case of RSD that developed following a harmless spider bite. “I don’t think there is a worse pain problem,” said Dr. Schwartzman of Lindsay’s condition. He was probably right.

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