In March of 2010, my daughter was involved in a serious car accident that left her battling the chronic neurological pain disorder Complex Regional Pain Syndrome (CRPS/RSD) and changed our lives forever. Follow us along on our journey. Our suitcases have no room for negativity.

26th March 2012

Photo reblogged from Project3x5 with 9 notes

project3x5: “Don’t tell God how big your storm is. Tell the storm how big your God is.”  That would be my beautiful foot. Jealous? My poor little toe was bitten by an ant last night. Think of it as the poor-man’s version to one of those fancy Asian pedicures where the fish bite your feet…  That last bit was a joke. Unfortunately, the ant bite was not. Long story short, I’m now flaring quite badly. Amazing how quickly our tides may turn, hey?  Praying for a quick recovery. On a positive note though, I have less than a week to wait for the actual, final, real life, absolute Spinal Cord Stimulator (SCS) to be implanted. Woaaah. That’s big. My lower body is jumping for joy (especially now!), but my back is still hurting from the trial and so is slightly worried about it. Ultimately though, I know that this implant will definitely be for the best. For sure. Any last minute tips on what I can expect? Suggestions? Comments? Warnings? Am I up for another round in the ICU? Another emotional roller coaster à la the trial? I’m open and willing to listen to all you have to say. In fact, everything would be appreciated. Though please try to frame the negative warnings as thoughtfully as possible. I’m in pain and so a bit sensitive from sleep deprivation/nervousness. You know how it goes! Thank yooou! xx

project3x5:

“Don’t tell God how big your storm is. Tell the storm how big your God is.” 

That would be my beautiful foot. Jealous?

My poor little toe was bitten by an ant last night. Think of it as the poor-man’s version to one of those fancy Asian pedicures where the fish bite your feet… 

That last bit was a joke. Unfortunately, the ant bite was not. Long story short, I’m now flaring quite badly. Amazing how quickly our tides may turn, hey? 

Praying for a quick recovery.

On a positive note though, I have less than a week to wait for the actual, final, real life, absolute Spinal Cord Stimulator (SCS) to be implanted. Woaaah. That’s big. My lower body is jumping for joy (especially now!), but my back is still hurting from the trial and so is slightly worried about it. Ultimately though, I know that this implant will definitely be for the best. For sure.

Any last minute tips on what I can expect? Suggestions? Comments? Warnings? Am I up for another round in the ICU? Another emotional roller coaster à la the trial?

I’m open and willing to listen to all you have to say. In fact, everything would be appreciated. Though please try to frame the negative warnings as thoughtfully as possible. I’m in pain and so a bit sensitive from sleep deprivation/nervousness. You know how it goes! Thank yooou! xx

Tagged: CRPS RSD complex regional pain syndrome painChronic painReflex sympathetic dystrophy

  1. chronicure reblogged this from project3x5
  2. katisconfused said: As a kid I once woke up to a carpenter ant biting me between the toes. It bit so hard it’s head had to be removed at the ER 8(
  3. jackiebarnes said: Love & light to you! Sending prayers, too, for a the pain to fade fast and the week to fly by! XO.
  4. girlfromhongkonginnewyork said: Hi new blog friend! I’m sure you get this all the time but I am inspired by your courage and strength. You (and your recovery) are in my thoughts today!
  5. project3x5 posted this